Parents reach settlement with IVF clinic after sons were born with genetic condition Fragile X syndrome

SMH,13 November 2017
Source: AAP
“The parents of two boys with an intellectual disability say they can move on with their lives after reaching a settlement with a Sydney IVF clinic. Leighee Eastbury sued Australian IVF provider Genea, formerly known as Sydney IVF, after failing identify she was a carrier of the Fragile X syndrome.”
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Insurers discriminating against people who get genetic test results could hobble research, bioethicists warn

SMH, 8 November 2017
Author: Kate Aubusson
“Insurers are able to discriminate against individuals who undergo genetic testing, and that threatens to hobble genomic research, bioethics and law experts have warned in a recent paper published in Public Health Genomics. Anyone who receives their results of genetic testing as part of a research project needs to disclose them to insurers if asked, despite the Human Genetics Society of Australasia calling for research findings to be excluded. Insurers can deny cover or hike up premiums for healthy individuals who discover they carry a mutation for a condition they may never develop based on the testing results, the authors warned.”
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The right to know versus the right to privacy: donor anonymity and the Assisted Reproductive Treatment Amendment Act 2016 (Vic)

Med J Aust 2017; 207 (9): 377-378.
Author: Xavier Symons
“Recent Victorian legislation is ethically defensible but will need to be closely monitored. On 1 March 2017, the Assisted Reproductive Treatment Amendment Act 2016 (Vic) came into effect, allowing for the retrospective release of anonymous donor information to donor-conceived children. The legislation, an Australian first, allows donor children to know the name, date of birth, ethnicity, physical characteristics, genetic conditions and donor code of their donor parents, even where anonymity has been requested.”
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Legislation opens can of worms for gamete donors

MJA Insight, 43(6), 6 November 2017
Author: Cate Swannell
“Victorian legislation allowing donor offspring to have the identifying details of their previously anonymous biological parent is an imperfect solution to a “genuine ethical dilemma” and needs “rigorous monitoring and review”, according to experts.”
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Australia’s health watchdog accused of ‘too close’ relationship with industry

SMH, 5 November 2017
Author: Joanne McCarthy
“Australia’s drug and medical device watchdog, the Therapeutic Goods Administration, needs a complete overhaul to distance it from the health industry and allow consumers to sue it for negligence, say academics and consumer advocates after the regulator quietly announced moves to classify all pelvic mesh devices high risk after years of controversy.”
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Bioethicists raise alarm about conflicts of interest in Australia’s IVF industry

SMH, 2 November 2017
Author: Esther Han
“A team of Australian bioethicists has found that conflicts of interest are leading to fertility doctors making decisions that financially benefit them and their employer, at the expense of their patients.”
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Queensland Health Ombudsman suspended over response to former Mater Hospital employee

SMH, 31 October 2017
Author: Toby Crockford
“The Queensland Health Ombudsman has been suspended over his response to information regarding a former Mater Hospital anaesthetic technician who faced court last week charged with fraud and assault.”
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De-doctoring medicine via another layer of bureaucracy

MJA Insight, 30 October 2017
Author: Aniello Iannuzzi
“The draft report of the Independent Review of Accreditation Systems within the National Registration and Accreditation Scheme (NRAS) for health professions has been released and it proposes massive changes, and is not to be glossed over.”
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