End-of-life care: how terminally ill kids and their parents can plan for a better death

The Conversation, online 5 November 2014
Author: Nikola Stepanov
“Advance care planning and advance health directives are useful tools to help manage the care of adults with palliative illness. …The scenario is different for children with a palliative illness, as most have never had legal capacity and are reliant on parents (or others) to make health-care decisions for them. But this doesn’t mean that children and adolescents shouldn’t have a say in their future care, or have their choices acknowledged and recorded.”
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