Becoming partners, retaining autonomy: ethical considerations on the development of precision medicine

BMC Medical Ethics 2016 17:67
Authors: Alessandro Blasimme, Effy Vayena
“Precision medicine promises to develop diagnoses and treatments that take individual variability into account. According to most specialists, turning this promise into reality will require adapting the established framework of clinical research ethics, and paying more attention to participants’ attitudes towards sharing genotypic, phenotypic, lifestyle data and health records, and ultimately to their desire to be engaged as active partners in medical research.”
Find article here.