A qualitative study of participants’ views on re-consent in a longitudinal biobank

BMC Medical Ethics 2017 18:22
Authors: Mary Dixon-Woods, David Kocman, Liz Brewster, Janet Willars, Graeme Laurie, Carolyn Tarrant
“Biomedical research increasingly relies on long-term studies involving use and re-use of biological samples and data stored in large repositories or ‘biobanks’ over lengthy periods, often raising questions about whether and when a re-consenting process should be activated. We sought to investigate the views on re-consent of participants in a longitudinal biobank.”
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